Volunteer with Share and Care


Share & Care Cockayne Syndrome Network is an ALL VOLUNTEER organization. There are no paid salaries or paid employees. Donations go directly to helping children with Cockayne Syndrome and support for their families. We also use funds raised for research into CS since currently there is no treatment or cure. We host yearly family and medical conferences to bring CS families and Doctors together. We are a 501(c)3 Not-for-Profit Organization, and donations are fully tax deductible and greatly appreciated!

We are always in need of volunteers to help us with our organization. If you have professional skills you would like to offer , we’d love to have you consult with us. If you would be interested in hosting a fundraiser, we would love to help you organize one. There are many volunteer opportunities available. If you feel that you have skills, or just the heart to want to help, please contact us at cockaynesyndrome@gmail.com