Together For Max

Together For Max

5Together 4 Max 2018

We found Share & Care
after MAX was diagnosed at age 11.
This network has helped our family learn more about CS and connect
with other families around the world that have a child(ren) with …

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Fluid overload

Fluid overload

Did you know that those affected by CS can develop Hypervolemia when given a maintenance IV rate? Hypervolemia is an overload of fluid in the child’s body. The CS child’s kidneys can not manage the increase in fluid. This homeostasis …

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CS drug treatment on the horizon

CS drug treatment on the horizon

There is a ray of hope for a possible treatment for our CS children.  I had a meeting with researchers from NIH yesterday regarding a drug trial being designed to help CS kids.  Over the next several months they will

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